I have suffered with antiphospholipid syndrome for a number of years suffering with many different symptoms. Then two years ago I was diagnosed with Retroperitoneal Fibrosis. Luckily for me, it has not affected my kidneys but it has effected my circulation very badly. I had IVC reconstructive surgery last year which has helped but I still have many ongoing symptoms. My medication which is lots has changed a lot over the last few years as they try to stop the growth so the My IHR interactive health record has been brilliant as I've been in control of updating my records to keep it all relevant. Now I have been told I must stay on warfarin for life so I also bought a bangle with this info on for extra clarification and instant notification in an emergency.
I have found these useful as I am deaf with lots of health issues and it's easy for those who tried to speak to me when I can't hear them if I am knocked out or having hypo. It has helped a few times when I am on my own. Really worth getting them.